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You are here: Home > Patient Support > Patient Support Sites

Patient Support Sites

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Web Site

Description

 

FibroAction

FibroAction was formed to raise awareness of Fibromyalgia Syndrome and aims to make up-to-date and accurate information about the condition easily accessible for patients; their friends, family and carers; members of the press & media; and healthcare professionals.

 

Fibromyalgia Association UK

FMA UK was established in order to provide information and advice to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.

 

UK Gout Society

The UK Gout Society provides gout sufferers with further information about the causes and treatment of gout, and about organisations that are committed to education, health promotion and the prevention of gout. In addition, it aims to increase public awareness and knowledge about this painful, potentially disabling, but eminently treatable disorder.

 

Hypermobility Syndrome Association

The Hypermobility Syndrome Association aims to provide support and information to those affected by the Syndrome and to promote knowledge and understanding within the medical community and the public at large.

 

Lupus UK

LUPUS UK is the only national registered charity supporting people with systemic lupus and discoid lupus and assisting those approaching diagnosis. We presently have over 7,500 Members and 30 Regional Groups who arrange medical talks, publish local newsletters, set up local occasions and organise fundraising events. LUPUS UK also produces an informative national magazine with lupus articles, letters, reports, and photographs, and operates a strong Grant Programme for research purposes and welfare.

 

Marfan Association UK

Support group which promotes education and research into the condition.

 

Myositis Support Group

Charity which provides information and practical advice and research into Dermatomyositis (DM), Polymyositis (PM), Juvenile Dermatomyositis (JDMS), Juvenile Polymyositis (JPM) and Inclusion Body Myositis (IBM).

 

National Ankylosing Spondylitis Society

Patient support group for people with ankylosing spondylitis

 

National Association for the relief of
Paget’s disease

Offers support and information for people with Paget’s disease and sponsors research into the disease.

 

National Osteoporosis Society

Patient support group which raises awareness of the condition and sponsors research into osteoporosis.

 

National Rheumatoid Arthritis Society

A patient led national Charity focusing entirely and specifically on Rheumatoid Arthritis.

 

 People with Arthritis/Rheumatism
in Europe

A pan-European initiative focused on improving the quality of life for the 103+ million Europeans affected by arthritis/rheumatism.

 

Perthes Association

Association which aims to help and advise families of children suffering from Perthes' disease and associated conditions.

 

Psoriasis Association

The Psoriasis Association aims to support those who have psoriasis; to raise awareness about psoriasis, and to fund research into the causes of and treatments for psoriasis.

 

Psoriatic Arthritis Alliance

Patient support group which provides information about the condition and campaigns for increased awareness and better treatment.

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